I mentioned last week that I am fortunate enough to run in the ING NYC Marathon this fall. This is a huge bucket list item … I’m scared, excited, nervous, thrilled, and my legs are already feeling the burn from training runs.
We have just about fifteen weeks to go and it’s time to start getting the word out about the wonderful organization that has made this happen.
In order to secure guaranteed entry to the race, my sister (she’s running, too!) and I have committed to fundraising for the Jackson Gabriel Silver Foundation (JGSF).
JGSF exists to eradicate EB (Epidermolysis Bullosa) which is a devastating disease affecting children from birth. For a child with EB, even the slightest touch or friction can cause their skin to tear or blister. For more information, please visit their website.
It absolutely breaks my heart (and I am sure it is breaking yours) and although its an extremely rare disease, it deserves a lot of funding and needs help gaining awareness, which is where you come in.
To save the children who affected by this disease, we need to share their stories, inspire action, and provide resources to the families who are facing the challenging battle of caring for a little one with EB.
Over the last three years, JGSF has raised over $1.5 million in funding for research and aid for families who need financial assistance to pay for the bandages and necessary treatments for their children. You can read about the progress they’re making here and see images of the little guy who inspired the foundation, Jackson. His family, the Silvers, are responsible for starting this amazing non-profit and it’s easy to see in his sweet little face how he’s been an inspiration to so many over the last few years.
I don’t want to upset you with sad or frightening images or scare you with terrifying and dismal survival statistics, but I do want to help find a cure and stop this disease from hurting precious little ones.
Please consider donating to my charity page on Crowdwise. By donating and sharing the mission of JGSF with others, you’ll help spread awareness and support the work of the Silver family to find a cure and end EB.
Thank you for your help! I can’t wait to share this journey with you! xoxo